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Palliative & End of Life Care: Supporting Patient Choice

October 27, 2016 @ 8:30 am - 5:00 pm

Palliative and End of Life Care

Phone Telephone: (0161) 376 9007         Book now   Register your interest   Previous event View Programme


Overview View Programme

Following on from the highly successful and well-attended event in Manchester, Open Forum Events are proud to be bringing the Palliative & End of Life Care: Supporting Patient Choice conference to London.

v2Palliative-and-End-of-Life-CareApproximately half a million people die every year in the UK. Three-quarters of these deaths are not sudden but are expected, requiring specialist care and treatment during the final days, in accordance with the wishes of patients and their families. An independent report has rated the quality of end of life care in the UK as one of the best in the world, however, as the ageing population continues to grow so does the number of people experiencing ‘drawn out deaths’. Improvements have been made in all areas of end of life and palliative care, however, to stay at the forefront of provision more needs to be done.

This is what some of the delegates had to say about the previous conference:

‘Brilliant! Well done, all very interactive and motivational.’

‘Speaker programme was interesting. Speakers passionate about their topic – they weren’t just ‘teaching’ sessions. Empowering.’

‘Excellent delivery by all speakers. Easily understandable, ready to answer questions and provide support outside of forum i.e. during breaks.’

The Palliative & End of Life Care: Supporting Patient Choice conference will examine how the delivery of care in the UK is evolving to support and fulfil need requirements, whilst respecting the choices expressed by patients and their families.

The event will feature a highly informative agenda, presenting speakers who are experts in their field, plus examples of best practice which delegates may feel appropriate to adopt into their own provision arrangements. Delegates will have the opportunity to question, discuss and debate the very latest policies, projects and emerging models of care, as well as share their own stories and experiences with the conference and contributing to wider thinking about end of life care.

CPDcertified event

More details                View Programme

Every patient suffering with an incurable and progressive illness deserves the very best palliative and end of life care with their own choices at the very heart. In the UK there have been some significant improvements in the care people receive as they near the end of their lives with some excellent examples provided in different settings. However, the fact remains that the experience for people approaching the end of life can be very varied and for some the quality of care is unacceptably poor.

Following the abandonment of the controversial Liverpool Care Pathway, the Leadership Alliance for the Care of Dying People (LACDP) published a new approach to the care of those in the final few days and hours of life, highlighting five priorities that focuses on the needs and wishes of the dying person and those closest to them, in both the planning and delivery of care wherever that may be.

The Five Priorities for Care are:

  • The possibility that a person may die within the coming days and hours is recognised and communicated clearly, decisions about care are made in accordance with the person’s needs and wishes, and these are reviewed and revised regularly.
  • Sensitive communication takes place between staff and the person who is dying and those important to them.
  • The dying person, and those identified as important to them, are involved in decisions about treatment and care.
  • The people important to the dying person are listened to and their needs are respected.
  • Care is tailored to the individual and delivered with compassion – with an individual care plan in place.


Recent reports undertaken by several different agencies reveal that there is still a considerable amount of work to be done to ensure that the UK remains at the forefront of palliative and end of life care. A report published jointly by a coalition of charities On the Brink: The Future of End of Life Care, claims that an estimated 48,000 dying people receive poor care. This was mainly attributed to them being in hospital as opposed to being at home or in other settings. Of the 500,00 deaths per year, 53% occur in NHS hospitals, with around 21% occurring at home, 18% in care homes, 5% in hospices and 3% elsewhere. This is despite the fact that 63% of people say that they would prefer to die at home, while 29% would prefer to die in a hospice. Macmillan Cancer Support claims that 85% of people who die in hospital would have preferred to die in another setting. Patients being left unsupported at home, with little advice for families, perpetuates a rise in emergency admissions and contributes to the denial of patient choice to die out of hospital. This in turn also plies more pressure on the hospital systems, as every death costs the NHS £4,500 and accounts for three million bed days.

A review by the Royal College of Physicians states that hospitals struggle to provide face to face palliative care on a 24/7 basis, with a lack of access to palliative care specialists during evenings and weekends. Of those investigated, only 16 out of 142 hospital sites provided round the clock specialist care. Other issues highlighted were found to be in the Do Not Resuscitate decision making process and deciding the ability of a patient to eat and drink in their final hours.

In May the Care Quality Commission (CQC) published a report, ‘A different ending: addressing inequalities in end of life care’. This review highlighted concerns that the quality of care being provided for people at the end of their lives is not of a consistently high enough standard or sufficiently personalised. It found that people from certain groups experienced poorer quality care at the end of their lives than others because providers and commissioners sometimes fail to understand or fully consider their specific needs. Whilst compiling the report the CQC did find some examples of good practice, however it concluded, to provide quality and truly personalised end-of-life care for everyone further improvements need to made, in particularly with communication between healthcare staff and those who were dying and their families.
One area of communication being tackled is in the decision making process to place Do Not Resuscitate orders on patients notes. Emergency Care and Treatment Plans are being introduced to encourage staff to talk to patients and relatives about dying and allowing them the opportunity to express their own wishes.

The Palliative & End of Life Care: Supporting Patient Choice conference offers the thoughts of highly knowledgeable speakers, sharing both professional and personal experiences. It is ideally placed to update delegates on the latest findings from research conducted to give an accurate picture of the experiences of patients nearing the end of their lives and their families. The day will look to how future care can be improved for all and share some of the excellent examples of good practice.

Benefits of Attending               View Programme

  • Hear what improvements have been undertaken to improve care
  • Learn about the areas that remain below an acceptable standard and what needs to be done to address them
  • Gain insight into caring for a dying person
  • How can we ensure those with learning disabilities have access to the same level of provision to the rest of the population?
  • Hear about forward-thinking practices in end of life care
  • What can be done to help children, young people and their families in dealing with a terminal or life-limiting illness
  • How will the NICE guidelines improve the experiences of those nearing the end of their life
  • What difference will Emergency Care and Treatment Plans in the decision-making process to resuscitate
  • Share best practice
  • Benefit from the opportunity to question, discuss and debate current working practices and those for the future
  • Take advantage of knowledge sharing and professional networking
  • Gain the maximum number of 6 CPD points
  • Make new contacts

Please see Terms and Conditions.


Blue Stream Academy

bsa_logo_flyerBlue Stream Academy is the UK’s leading provider of eLearning for the Health Care Sector. We offer highly effective online training systems to suit the needs of GP Practices, Nursing and Residential Care Homes, Dental Practices, Hospices and Urgent Care. Additionally Blue Stream Academy now provide of the Care Certificate eLearning Suite; this can be used in conjunction with a work place assessor to achieve the one off certificate.

With over 45 RCGP and CPD accredited modules covering more than 250 topics, we aim to ensure CQC compliance and reduce costs for our customers.



Kyowa Kirin

Kyowa Kirin International PLC is a specialty pharmaceutical company engaged in the development and commercialisation of prescription medicines for the treatment of unmet therapeutic needs in major markets. Headquartered in Galashiels, Scotland, it is a subsidiary of Kyowa Hakko Kirin Co., Ltd., the Japan-based global specialty pharmaceutical company. Sales and marketing of its portfolio of products are handled by commercial subsidiaries in the UK, US, France, Germany, Spain, Italy and other EU countries.



Speaker Biographies

Salli Jeynes, Chief Executive, End of Life Partnership (EoLP)

Salli JeynesSalli is Chief Executive of the End of Life Partnership (EoLP); an organisation which faciliates people and organisations to work together to enable better end of life experience and care. EoLP leads, educates and facilitates excellence and best practice in end of life care and influences and enables our communities to live and die well.
Salli strongly believes in the power of partnership working; joining up organisations and people, listening to, learning from, and inspiring each other to work towards a better and compassionate end of life experience for all.

Salli’s recent career includes working as a Director of Education and a Macmillan Clinical Nurse Specialist in acute and community care. She has also worked as a ward manager, a practice educator and a nurse teacher.



Janet Ortega, Head of Integrated Care, Care Quality Commission

janet_ortega_portraitv2Janet Ortega is the Head of Integrated Care at the Care Quality Commission. The work of the integrated care team includes assessing services across populations and care pathways through activities such as thematic reviews, for example the end of life care. Janet trained as a nurse and has worked in both health and social care; in services for people with mental health needs and services for older people. Janet has worked in the regulation of health and care services for a number of years, before moving to focus on integrated care.



Nicola Winship, Carer

Nicola WinsipNicola’s career began in retail, she then went on to specialise in HR and Training. Qualifying in 1993, her first role was as the Training Manager for Umbro in Manchester, then as an Area HR and Training Manager for Sema Group based in Nottingham.

Whilst raising her family she ran her own business helping local businesses grow by gaining an effective presence on the Internet. She gave up work in 2012 to help care for her father who had been diagnosed with Alzheimer’s Disease in 2007.

Watching her Father’s decline with Alzheimer’s over the last 8 years and helping to care for his needs at each stage has left Nicola wanting to make things better in the future for other Alzheimer’s Patients and their Carers. She firmly believes that the more discussion there can be with patient and family, the more prepared they will be in the final stages.


Suzanne Jones, Project Lead for personal health budgets at end of life, Personalisation and Choice Group, NHS England

Suzanne_Jones_portraitSuzanne Jones is NHS England’s Project Lead for Personal Health Budgets in the End of Life Pathway. Suzanne began working in the NHS in 1975 as a student physiotherapist, and spent the first 23 years of her career working clinically, both in the NHS and in the private sector. Following the creation of PCTs, Suzanne became a clinical member of North Devon PCT’s Professional Executive Committee, and a year later Head of Physiotherapy. In 2005, Suzanne moved into commissioning, with a portfolio covering older people and Continuing Healthcare. From 2009-2014, Suzanne led Oxfordshire’s work to successfully pilot personal health budgets and prior to moving to NHS England, Suzanne was Programme Director for Community Integrated Localities in Oxfordshire. Outside work Suzanne has enjoyed several volunteer roles, most notably as a volunteer at the London Olympics and as Chair of a local parish council.


Gemma del Toro, Palliative Care Clinical Nurse Specialist, Nottinghamshire Healthcare NHS Foundation trust

gemma_deltoro_portraitThis year has been a transitional year in my career pathway thus far moving from a post in the field of learning disabilities to achieving my long term goal of working full time within Specialist Palliative Care. Firstly, on secondment to Royal Derby Hospitals Specialist Palliative Care Services in a development post to now my new role as a Clinical Nurse Specialist in the Specialist Palliative Care Community Outreach team for Nottinghamshire Healthcare NHS Foundation Trust.
Prior to this change, as a RNLD I have always worked with the field of learning disabilities most recently in the role of Primary Care Liaison Nurse (formally known as Learning Disability Health Facilitator) for Mansfield and Ashfield (Nottinghamshire Healthcare NHS Foundation Trust) and previously as a Community Learning Disability Nurse with an integrated health and social care team. In these posts I was involved in various projects and initiatives aimed at improving the health and access to services of people with learning disabilities. An area of interest of mine has always been end of life of life care for people with learning disabilities and am proud to say that I am the co-leader for a project on that subject that received a ‘Highly Commended’ Award at the Nursing Times Awards 2011 and the project was also a finalist in the Mediplex Awards 2011. This project and my personal interest lead me to study on the Masters Course in Supportive and Palliative Care at Sheffield Hallam University of which I am now near completion. Another project which I co-lead is ‘Spot On’ which excitingly won the Learning Disability Nursing category of the Nursing Times Awards in London 2014.


Kate Masters, End of Life Campaigner

Kate_masters_portraitI’m a wife and mum-that’s my life! But in the context of campaigning, I’m the daughter of a woman who was denied an important conversation and subsequently died in hospital and a man who took a case against that hospital so nobody else would have to suffer as she had. I use my spare time (and energy) to try and persuade medics how important it is that they have conversations about DNACPR and I’d really like to play a bigger part in educating the public at large about their rights relating to DNACPR.




Joanna Goodrich, Head of Evidence and Learning, The Point of Care Foundation

Joanna _Goodridge_portraitJoanna joined the Point of Care Programme at the King’s Fund from its beginning in 2007 and moved with it when it became The Point of Care Foundation in 2013. Joanna has managed a number of quality improvement programmes with a patient focus (specifically ‘experience based co-design’ EBCD). She co-wrote the EBCD toolkit and now runs training and support for teams using this approach. Joanna is also responsible for providing the research evidence which underpins the work of the Foundation.
Before joining the King’s Fund she worked in public health and for a number of charities, most recently the Multiple Sclerosis Society. Joanna was a non-executive director for five years in her local NHS trust.



Barbara Gelb OBE, CEO, Together for Short Lives

Barbara_Gelb_portraitBarbara Gelb’s background is in social work and her career has been dedicated to the development and delivery of high quality services for children and families.

Barbara studied social work and psychology at the University of Cape Town, and also holds an MSc in Leadership and Organisation of the Public Services from Bristol Business School. Barbara became Chief Executive of Children’s Hospices UK in 2001 and was appointed to the role of Chief Executive of Together for Short Lives in 2012 following the merger of Children’s Hospices UK and ACT.

Barbara was appointed Officer of the Order of the British Empire (OBE) in the Queen’s New Year Honours List 2015, in recognition of her services to improving care services for children.


Kath Sutherland, Equalities Consultant and Founder START Ability Services
kath_sutherland_portraitKath is an Equalities Consultant and the Founder of START Ability Services. She has been recognised with numerous accolades for her innovative work in removing the barriers to equal participation in society. Her work has been particularly focused on supporting people with impairments to gain access to appropriate support, information and advice for impairment related issues. To this end, she has acted as Chair to several advocacy organisations and has been a member of various Steering Groups and Committees relating to health (NICE) and social care (SCIE), inclusive education, barriers to employment for disabled people, supporting people with learning difficulties and independent living strategies.

Kath is responsible for hosting an award winning national Work Advice Service, on behalf of the Association of Disabled Professionals and their Disabled Entrepreneurs’ Network. She has published research for the Economic and Social Research Council and is currently submitting her thesis for a Doctorate in Education highlighting the barriers faced and facilitation methods used to support people with learning difficulties (learning disabilities). She has a particular interest in the facilitation of complete and comprehensive solutions to remove any presenting barriers to equality in participation, including those faced by people with complex health conditions and impairments.

Jayne Cooper, Director of Nursing for Woking and Sam Beare Hospices

Jayne_Cooper_portraitJayne has over 20 years of nursing experience. She started her career as a children’s nurse, moving into Children’s community nursing and gaining her degree in Children’s community nursing and becoming a registered practitioner in this field, before returning to acute care. She has held a number of senior positions and management roles, including Associate Chief Nurse for Integrated Medicine at Buckinghamshire NHS Trust. During 2011 she was awarded a Florence Nightingale Scholarship for children and young people’s nursing leadership. Her current post is Director of Nursing for Woking and Sam Beare Hospices in Surrey.



Claire Henry, Chief Executive, National Council for Palliative Care

claire_henry_portraitClaire is the Chief Executive of The National Council for Palliative Care & Dying Matters. Prior to this role, Claire was Head of Programmes for Long Term Conditions and End of Life Care at NHS Improving Quality.

Previous roles have included Programme Director for the National End of Life Care Programme which supports the implementation of the national end of life care strategy for England. She also had a number of roles within the Cancer Services Collaborative ‘Improvement Partnership’ (CSC ‘IP’) supporting cancer networks in the implementation of service redesign for cancer services.

Claire has also recently chaired the Board for the report, What’s important to me: A review of Choice in End of Life Care which calls for a new ‘national choice offer in end of life care’ to be established and which was set up by the Health Minister, Rt Hon Norman Lamb MP.

Claire’s background is in nursing. She trained at South Lincolnshire School of Nursing. After qualifying Claire worked predominately in cancer and palliative care.

Booking information

If you would like assistance registering your place please contact Benjamin Selby on 0161 376 9007 and we will be happy to assist.

Discounts for 3 or more delegates are available.

Want to pay by invoice? If you select your tickets and click on the green Register button. Once you’re through to the registration page, you can switch payment method from Credit/ Debit Card to Pay by Invoice– if you get stuck please call us on 0161 376 9007 and we will be happy to help.

Accountable Officers
Allied Health Professionals
Bereavement Support Teams
Care Home Managers
Chairs / Chief Executives
Clinical Commissioning Groups
Clinical Leads and Specialists
Community and District Nurses
Dementia Care Teams
Directors of Adult Social Services
Directors of Children’s Services
Directors of Nursing
Directors of Public Health
Emergency Care Leads
End of Life Care Leads
General Practitioners and Practice Managers
Geriatric Health Teams
Health and Social Care Chaplains / Spiritual Care Coordinators
Health and Wellbeing Boards
Hospice Managers
Managing Directors
Medical Directors
Mental Health Practitioners
Palliative Care Teams
Safeguarding Adults Boards
Social Workers

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(0161) 376 9007
[email protected]


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