Living Well with Autism: Beyond the Limitations
- 28 May 2015
- 08:00 - 13:30
- Manchester Conference Centre
In more recent times the learning disability and autism sector has deservedly been the focus of greater attention. With approximately 1.5 million people in the UK with a learning disability and 1% of the population with an autism spectrum condition it is a continuing process to make things better for those that are living with or affected by learning disability and/or autism.
Open Forum Events has and enviable reputation for hosting highly informative, practical and thought-provoking meetings, bringing together key stakeholders to discuss, debate and help formulate future policy and action.
The Learning Disabilities and Autism: Improving Care conference will be no exception in continuing to drive the agenda to improve lives.
There has been some significant activity and new developments in recent months and this conference, with the insightful contributions from the expert speakers, will provide delegates with updates on:
As we enter 2020 join us at the Learning Disabilities and Autism: Improving Care conference with the hope that by the end of the decade, if not sooner, inequalities will be a thing of the past for people with learning disability and/or autism.
In May 2019, NHS England announced an extra £5 million of funding specifically to care for people with a learning disability. The prime concerns include the scale of premature deaths of people with learning disabilities and/or autism, based on the latest data that has revealed that individuals are dying 25 years earlier than the general population. The NHS is committed to carrying out reviews improve care and take action nationally to tackle serious conditions.
To further enhance care and treatment, the Department of Health and Social Care has undergone a consultation focusing on specialist training for health and care professionals to better understand the needs of people and make the necessary adjustments to support them.
A report by the Children’s Commissioner has revealed harrowing evidence of children, particularly those who are autistic or have a learning disability, being unnecessarily admitted to secure hospitals, some spending prolonged periods in these institutions, often a long way from home, family and friends. Some of the practices these children are subjected to are significantly disturbing with the report describing the use of restraint and seclusion. The Commissioner described these children as "some of the most vulnerable children of all, with very complex needs, growing up in institutions usually far away from their family home. For many of them this is a frightening and overwhelming experience. For many of their families it is a nightmare."
In another hospital report, undertaken by the CQC, it warns that patients with learning disabilities and autism are being let down by a ‘broken’. Prolonged segregation, wards unsuitable for autistic patients and a lack of training of staff were just some of the issues highlighted.
Within the community there are also situations that need to be overcome which include discrimination, prejudice and hate crime. The charity United Response has launched a campaign ‘Am I Your Problem’ to challenge the general public to consider the harm they may be inflicting on people with learning disabilities and autism through their actions and behaviour.
Prejudicial attitudes can also be a factor in social withdrawal, leading to feelings of loneliness and isolation. One scheme to try and combat this is fronted by Ambitions about Autism. Young people form the charity have launched a new resource to help other young autistic people to access youth groups and after school activities.
Other positive action to improve people’s situations is the continuing STOMP programme dedicated to reducing the use of psychotic medication to treat challenging behaviour. The use of technology is also a force for good and can support people to access the care they need, remain as independent as possible and help connect to social networks.
There is plethora of pioneering work being done and significantly a great deal is being undertaken by those who have a learning disability and /or autism themselves and therefore have the best understanding of what is required to make improvements.
This conference is the next installment, in a series of highly insightful events, focusing on improving care, support and life chances for all those living with or affected by learning disabilities and/or autism.
Prevention and early intervention in developing positive support that helps people to have a good life.
synopsis to follow........
Jo will be co presenting with a person with a learning disability who will share their experiences.
United Response’s ‘Am I Your Problem?’ campaign challenges the hidden indifference, discrimination and sometimes outright hostility towards people with learning disabilities or autism. The charity asked more than 150 people it supported about their experiences within different social settings. The widespread hostility and prejudice they face is often not acknowledged, recognised or reported as a hate crime.
All children should have their voices heard. This is especially the case for those with a learning disability and younger children.
Express solves this problem. It’s a co-designed, innovative and user-friendly app that helps them express their views, wishes and feelings in a fun way that’s easy for workers to understand and evidence.
A hot, two-course lunch consisting of multiple options will be provided for delegates. We cater for all dietary requirements, including vegetarian, vegan and gluten/dairy-free; just notify us ahead of time should you have any allergens or requirements.
This report looked at how people with a learning disability can experience a life like we all experience. It found that inequalities start almost from birth.
(two or three sentences outlining the theme of the presentation) Working closely with SeeAbility and experts from across the optical learning disability and SEND profession, NHS England has developed a new service that will transform eye care for children with learning disabilities and autism within a special school environment. This group of children are 28 x more likely to have serious sight issues in comparison with the general population, and approximately one third of them will need glasses. However, despite their greater need, research highlights that only 10% of these children have accessed services at a community optician, and 44% have never received a sight test or any other kind of eyecare service.
This programme aims to provide a comprehensive eyecare service that goes beyond the provision of sight tests alone. Children who require glasses for example will have them dispensed on the school premises, avoiding the need to redeem optical vouchers in optometry practices. And every child will receive a report written in plain English for parents and teachers that explains what the child can see, with advice and guidance on the strategies that can be adopted in the classroom and at home to improve the child’s level of engagement with their immediate environment. These reports will also feed into the child’s Education, Health and Care Plans.
The special school service represents an important first step towards NHS England’s broader ambition to improve access to sight tests for all people with a learning disability and autism, including children in mainstream schools and adults.
Having difficulty paying through Eventbrite? If you would like assistance registering your place please contact me on 0161 376 9007 and i'll be happy to assist. If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.Discounts for 3 or more delegates are available.
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If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.
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