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Palliative & End of Life Care: Supporting Patient Choice

  • Thursday, 27 October 2016
  • The Royal National Hotel, London
  • 08:30 - 17:00
Expert Speakers
Sponsors & Supporters
  • Overview

Following on from the highly successful and well-attended event in Manchester, Open Forum Events are proud to be bringing the Palliative & End of Life Care: Supporting Patient Choice conference to London.

Approximately half a million people die every year in the UK. Three-quarters of these deaths are not sudden but are expected, requiring specialist care and treatment during the final days, in accordance with the wishes of patients and their families. An independent report has rated the quality of end of life care in the UK as one of the best in the world, however, as the ageing population continues to grow so does the number of people experiencing ‘drawn out deaths’. Improvements have been made in all areas of end of life and palliative care, however, to stay at the forefront of provision more needs to be done.

This is what some of the delegates had to say about the previous conference:

‘Brilliant! Well done, all very interactive and motivational.’

‘Speaker programme was interesting. Speakers passionate about their topic – they weren’t just ‘teaching’ sessions. Empowering.’

‘Excellent delivery by all speakers. Easily understandable, ready to answer questions and provide support outside of forum i.e. during breaks.’

The Palliative & End of Life Care: Supporting Patient Choice conference will examine how the delivery of care in the UK is evolving to support and fulfil need requirements, whilst respecting the choices expressed by patients and their families.

The event will feature a highly informative agenda, presenting speakers who are experts in their field, plus examples of best practice which delegates may feel appropriate to adopt into their own provision arrangements. Delegates will have the opportunity to question, discuss and debate the very latest policies, projects and emerging models of care, as well as share their own stories and experiences with the conference and contributing to wider thinking about end of life care.

  • Confirmed Speakers

Event Sponsors

  • Event Programme


Registration and Coffee in the Networking Area


Chair’s Opening Address


This opening address will cover some of the key facts and explore some of the challenges surrounding palliative and end of life care. Salli will share both her professional and personal reflections formulated from her extensive experience in this very important but often overlooked area of care.


Keynote Address

  • Janet Ortega, Head of Integrated Care, Care Quality Commission (confirmed)
"Caring for the Dying with Choice and Compassion"

 Palliative and End of Life Care in the UK has been improving and is regarded as one of the best in the world. However, several recent reports have highlighted some of the weaknesses in the system and areas that need to be addressed to ensure everyone approaching the end of life receives high quality, personalised care.

"A Carer’s Perspective"

 A highly emotional account of one family’s experience of the end life care received by a much loved relative.

  • Suzanne Jones, Project Lead for personal health budgets at end of life, NHS England (confirmed)
"Utilising Personal Budgets"

An update on progress and work to date by NHS England to make End of Life Care personalised, including the introduction of personal health budgets or similar delivery models.


Question and Answer Session


Coffee in the Networking Area

  • Gemma del Toro, Clinical Lead Nurse Specialist, Dementia Palliative Care Team, Derbyshire Community Health Services NHS Foundation Trust (confirmed)
"Caring for those with Learning Disabilities"

Past experience has shown that people with learning disabilities who were facing a life-limiting illness did not seem to access the same services or receive the same quality of service as the rest of the population. Individuals with learning disabilities, who have palliative care needs, should receive the coordinated support needed in living their lives to the full, until the end of their life.

"A Families Experience of DNACPR"

The now withdrawn Liverpool Care Pathway (LCP) received criticism for the lack of communication and consultation between patients and staff, with some people being placed on the pathway without their or their family’s knowledge. Similarly, Do Not Attempt Resuscitation orders were on occasions put in place without patients and relatives being made aware. Hear what happened to Kate’s family.

  • Joanna Goodrich, Head of Evidence and Learning, The Point of Care Foundation (confirmed)
"Resilience-Supporting Hospice Staff at Stressful Times"

 To better support staff and volunteers Hospice UK commissioned The Point of Care Foundation to develop a framework which will be used to assess and build the resilience and to help hospices improve the wellbeing of their workforce volunteers.


Question and Answer Session


Lunch in the Networking Area


Chair’s Afternoon Address

"Meeting the Palliative Needs of Children, Young People and their Families"

There are an estimated 49,000 children and young people in the UK living with a life limiting or life threatening condition who may require specialist care. There are areas of concern around the provision of children’s palliative care and specifically end of life care which need to be addressed.

  • Kath Sutherland, Equalities Consultant and Founder, START Ability Services (confirmed)
"Breaking Down the Barriers to Effective Person-Centred Support at End of Life"

New NICE guidelines on end of life care aim to put the dying person at the heart of decisions about their care, so that they can be supported in their final days in accordance with their wishes. There are many barriers in the way of achieving truly personalised support and these must be addressed to ensure that everyone receives appropriate end of life care.


Question and Answer Session


Afternoon Break


Sharing Best Practice

  • Jayne Cooper, Director of Nursing, Woking and Sam Beare Hospices (confirmed)
"The Award Winning CoSI team ‘Coordinated, Safe, Integrated"

The CoSI team ‘Coordinated, Safe, Integrated’, a partnership of community care organisations in North West Surrey, with Woking & Sam Beare Hospices working as lead partner has been awarded ‘End of life care champions of the year’. This award is another boost for the CoSI team who recently won the End of Life Care award at the Kent Surrey Sussex Academic Health Science Network Awards


Afternoon Keynote Address

  • Claire Henry, Chief Executive, National Council for Palliative Care (confirmed)
"Advance Care Planning"

Advance care planning is an extremely important factor in improving the end of life care experience for patients and their families reducing stress, anxiety, and depression for those left behind.


Question and Answer Session


Chair’s Closing Remarks and Event Close

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The Royal National Hotel, London

The Royal National Hotel, London

Offering breathtaking views across Russell Square the hotel is within easy walking distance to the British Museum. Well located with Russell Square underground station a 2 minute walk away.

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