Palliative and End of Life Care: Tackling Variations, Eradicating Inequalities
- 09 February 2017
- 08:30 - 15:45
- Manchester Conference Centre
Life expectancy has increased dramatically over recent years and it is expected to continue, as futuristic medical advancements are applied. Although the government’s goal is to improve healthy life expectancy by at least 5 years by 2035, the reality is that many people, living extended lives, do not live with good health. The inevitability of death has been delayed and we are more likely to die slowly over a protracted period of time. During this prolonged time frame, the demand for palliative and ultimately end of life care will increase, but can current and future provision meet these needs?
The Palliative & End of Life Care: Improving Provision to meet Increasing Demand conference will bring together those who are dedicated to caring for people with life limiting conditions and those nearing the end of their lives. The event will provide a platform for delegates to examine:
Join us for a day of insightful and informative sessions, delivered by expert speakers, plus the opportunity to network with like minded peers and fellow professionals.
Every patient suffering with an incurable and progressive illness deserves the very best palliative and end of life care, with their own choices at the very heart. In the UK there have been some significant improvements in the care people receive as they near the end of their lives, with some excellent examples provided in different settings. However, the fact remains that the experience for people approaching the end of life can be very varied and for some the quality of care is unacceptably poor.
In the past death was regarded as an unpredictable event and many more people died younger and often suddenly. In today’s society, more people are living longer and are dying off much more slowly. With increased life expectancy there has been a downward trend in the number of deaths in England since the late 1980’s. The inevitability of death means that this reduction in numbers will not continue indefinitely. Delayed dying is now accounting for a rise in the number of deaths. Figures show that in 2017 the annual death toll in England rose to 500,000 and Public Health England anticipates this to increase by a further 10% by 2023.
Life expectancy for men is 79.6 and 83.2 for women, however, the data reveals that women will spend on average 19.3 years of their lives in poor health and men 16.2 years. The number of people living with complex multiple health conditions, requiring extra support as they near the end of their lives, is on the rise. The stark statistics indicate that the provision of quality and comprehensive palliative and end of life care must be a priority for health and social care organisations, as it is predicted that there will be a 42% increase in demand for palliative care by 2040.
Rick Wright, Policy Manager at Marie Curie;
“This means that proper end-of-life care will be more important than ever for guaranteeing that people are able to get the support they need in their final weeks and days.”
“If the NHS is going to be in a position to confront this challenge, it must ensure that end-of-life care remains a priority in its long-term planning.”
As more people die, the challenge will be to make available the right palliative and end of life care, in the right place at the right time.
Research from Kings College London reveals that despite and ever increasingly aged population, local authorities are not prioritising palliative care. Palliative care was only mentioned in 52% of health and wellbeing board’s strategies, with just 4% citing it as a priority. The report also found that there was little use of evidence in end of life care, particularly when assessing the effectiveness of interventions. Budgets per patient for specialist palliative care varied from £51.83 to £2329 per year across England.
The Palliative & End of Life Care: Improving Provision to meet Increasing Demand conference will discuss the issues of rising demand and how service provision can be developed to ensure that all those requiring palliative of end of life care receive the most appropriate support.
As the population becomes more aged, how and when we die is changing. People living extended lives often do not live those extra years in good health and will require extra specialist services such as palliative care. The impact of delayed dying is now being realised with a rise in the number of deaths in England per year and this is set to continue to increase in the immediate future.
• Overview of our ambitions and commitments for EoLC
• Summary of NHSE/I strategy for Palliative and EoLC including summary of NHS Long Term Plan
• Implementation of Universal Personalised Care and application to EoLC
Evidence from bodies such as the Care Quality Commission shows that people from certain groups in society sometimes experience poorer quality care at the end of their lives because their needs are not always fully understood or considered. People may be less likely to receive good care because of age, ethnic background, sexual orientation, gender identity, disability or social circumstance
Dementia is now the most commonly recorded cause of death in the UK, but dementia guidelines often have little discussion on how to best care for people with dementia when they are dying. There are further challenges to implementing guidance in practice. People with dementia have complex needs and issues such as autonomy and capacity are key. Ensuring a good death for people with dementia can be challenging but is possible with multidisciplinary working and a holistic approach.
Bolton Hospice hosted a very successful education course - Supporting Families and Children through Loss, Grief and Bereavement - during Dying Matters Awareness Week in May 2018 - aimed at staff in local schools and nurseries.
The Daffodil Standards are the UK General Practice Standards for Advanced Serious Illness and End of Life Care. They are a blend of quality statements, evidence-based tools, reflective learning exercises and quality improvement steps.
Clinicians need to be equipped to offer patients honest conversations about what they can expect in the future, to give them choices and control over the remainder of their lives. This is not just about high-quality palliative care in the last weeks or days, but about holding
conversations much earlier after diagnosis of a progressive or terminal condition, including frailty.
The value of volunteers in providing emotional support, companionship and friendship to patients and families at the end of life cannot be underestimated. Volunteers can play a vital part in supporting organisations, such as hospices, to deliver high quality care.
This session will look at Macmillan’s legacy in investing in and delivering end of life care in the community. It will examine and review the research and insight we’ve gained and how this has shaped our future plans.
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If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.
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