Palliative and End of Life Care: Tackling Variations, Eradicating Inequalities
- 09 February 2017
- 08:30 - 15:45
- Pendulum Hotel & Manchester Conference Centre
Life expectancy has increased dramatically over recent years and it is expected to continue, as futuristic medical advancements are applied. Although the government’s goal is to improve healthy life expectancy by at least 5 years by 2035, the reality is that many people, living extended lives, do not live with good health. The inevitability of death has been delayed and we are more likely to die slowly over a protracted period of time. During this prolonged time frame, the demand for palliative and ultimately end of life care will increase, but can current and future provision meet these needs?
The Palliative & End of Life Care: Improving Provision to meet Increasing Demand conference will bring together those who are dedicated to caring for people with life limiting conditions and those nearing the end of their lives. The event will provide a platform for delegates to examine:
Join us for a day of insightful and informative sessions, delivered by expert speakers, plus the opportunity to network with like minded peers and fellow professionals.
Every patient suffering with an incurable and progressive illness deserves the very best palliative and end of life care, with their own choices at the very heart. In the UK there have been some significant improvements in the care people receive as they near the end of their lives, with some excellent examples provided in different settings. However, the fact remains that the experience for people approaching the end of life can be very varied and for some the quality of care is unacceptably poor.
In the past death was regarded as an unpredictable event and many more people died younger and often suddenly. In today’s society, more people are living longer and are dying off much more slowly. With increased life expectancy there has been a downward trend in the number of deaths in England since the late 1980’s. The inevitability of death means that this reduction in numbers will not continue indefinitely. Delayed dying is now accounting for a rise in the number of deaths. Figures show that in 2017 the annual death toll in England rose to 500,000 and Public Health England anticipates this to increase by a further 10% by 2023.
Life expectancy for men is 79.6 and 83.2 for women, however, the data reveals that women will spend on average 19.3 years of their lives in poor health and men 16.2 years. The number of people living with complex multiple health conditions, requiring extra support as they near the end of their lives, is on the rise. The stark statistics indicate that the provision of quality and comprehensive palliative and end of life care must be a priority for health and social care organisations, as it is predicted that there will be a 42% increase in demand for palliative care by 2040.
Rick Wright, Policy Manager at Marie Curie;
“This means that proper end-of-life care will be more important than ever for guaranteeing that people are able to get the support they need in their final weeks and days.”
“If the NHS is going to be in a position to confront this challenge, it must ensure that end-of-life care remains a priority in its long-term planning.”
As more people die, the challenge will be to make available the right palliative and end of life care, in the right place at the right time.
Research from Kings College London reveals that despite and ever increasingly aged population, local authorities are not prioritising palliative care. Palliative care was only mentioned in 52% of health and wellbeing board’s strategies, with just 4% citing it as a priority. The report also found that there was little use of evidence in end of life care, particularly when assessing the effectiveness of interventions. Budgets per patient for specialist palliative care varied from £51.83 to £2329 per year across England.
The Palliative & End of Life Care: Improving Provision to meet Increasing Demand conference will discuss the issues of rising demand and how service provision can be developed to ensure that all those requiring palliative of end of life care receive the most appropriate support.
This presentation will focus on:
This presentation will discuss the projected growth in the number of people using alcohol and drugs at, or near, the end of life. It will draw on a recently completed programme of research exploring the challenges of, and responses to, people using substances in palliative and end of life care. It will set out the implications for future service provision and give examples of the good practice identified.
The presentation will share the story of Alison, who was supported by MacIntyre for thirty years right through to her end of life care. Alison lived with a learning disability and was diagnosed with dementia when she was 47.
We will share our experience and lessons learned.
Dementia is now the most commonly recorded cause of death in the UK, but dementia guidelines often have little discussion on how to best care for people with dementia when they are dying. There are further challenges to implementing guidance in practice. People with dementia have complex needs and issues such as autonomy and capacity are key. Ensuring a good death for people with dementia can be challenging but is possible with multidisciplinary working and a holistic approach.
This presentation will explore best practice and the work the education team has been doing to support children through loss, grief and bereavement within Bolton. This includes the setting up of a family bereavement programme, Dying Matters award 2018, teacher training and support and the introduction of a new project with a focus on teenage bereavement.
The RCGP/Marie Curie Daffodil Standards is a self service quality improvement tool for end of life care in general practice
Clinicians need to be equipped to offer patients honest conversations about what they can expect in the future, to give them choices and control over the remainder of their lives. This is not just about high-quality palliative care in the last weeks or days, but about holding
conversations much earlier after diagnosis of a progressive or terminal condition, including frailty.
Volunteers are a valuable asset in healthcare but are sometimes underused and undervalued.
Volunteers are an untapped resource with the potential to enhance quality patient care at the end of life but also to compliment and support staff.
Each year approximately 74,000 people die in nursing or residential homes in the UK, much of the end of life care is delivered by unregistered healthcare workers with little or no training in palliative care.
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