Learning Disabilities and Autism: Equality and Empowerment

  • Tuesday, 09 November 2021
  • Manchester Conference Centre
  • 08:30 - 17:00
150+
Conference
Attendees
10
CPD
Credits
14+
Expert Speakers
20+
Sponsors & Supporters
  • Overview

Open Forum Events are proud to be recognised as a leading organiser of national conferences informed by the experiences of people living with or affected by learning disabilities and autism. This year's conference will mark our seventh annual event providing a platform for learning through keynotes, panels, knowledge sharing and dissemination of best practice - discussing contentious issues and challenging topics, as well as assessing the way forward.

Conference delegates will take away the following benefits of attending this face-to-face conference:

  • 10 CPD Points.
  • Examine the diverse impacts the pandemic and infection control measures are having on people living with a learning disability, autism or both - exploring the appropriate, positive action that can be pursued to support individuals; as well as reviewing how pre-existing, preventable health inequalities have been detrimental to the community, leading to avoidable deaths during the pandemic. 
  • Receive data-driven and personal insights into where growing prejudices, discrimination and hate crime against people living with learning disabilities and/or autism is taking place - taking testimonies from people with lived experiences, as well as developing best practices for safeguarding individuals from online harms.
  • Learn more about legislative changes, such as reform(s) to the Mental Health Act that are designed to reduce the number of people with a learning disability or autism being sectioned and expand individual's autonomy over their own care, as well as learning about the practical implementation of the NHS learning disabilities improvement standards and the CQC's new role to focus on implementing changes to their regulation specifically for people with a learning disability and those that care for autistic people.
  • Updates on implementation of the NHS Long Term Plan's targets to improve the standard and selection of services available to people living with learning disabilities, autism or both, including the introduction of hearing, dental and sight checks for children and young people through initiatives like the NHS England Special School Eyecare Programme; increasing the uptake of annual health checks for people with a learning disability to at least 75% for those that are eligible, assigning young people with the most complex needs a designated keyworker by 2023/24 and integrating the Learning Disability Improvement Standards across all NHS funded care providers.      
  • Confirmed Speakers

  • Event Programme

08:30

Registration and Coffee in the Networking Area

09:25

Opening Address

Faizan has lived with Mosaic Edwards' syndrome since birth. All babies born with Edwards' syndrome will have some level of learning disability and sadly, the majority of babies born with Edwards' syndrome will not live past their first birthday. Faizan, now 18, has struggled with a speech impediment so severe that it prevented him from being able to say his own name until 2019.

 

With support, Faizan has learnt to speak with confidence about overcoming a disability and will Chair sessions of the conference.

Read more about Faizan's story in the Manchester Evening News here.

09:30

Keynote Address

  • Debbie Ivanova, Deputy Chief Inspector of Adult Social Care, Care Quality Commission (CQC) (confirmed)
"Transformation of How we Regulate Services for People with a Learning Disability and Autistic People"

Unfortunately, we’ve seen too many times over the past few years that people with a learning disability and autistic people are not getting access to the right care.  Despite significant national attention on this issues, over 2,000 people remain in hospital which is not in line with best practice.  In this session, we’ll talk about how the CQC have put in place a new role to focus on implementing changes to our regulation specifically for people with a learning disability and those that care for autistic people.

 

Join us to understand CQC’s key work areas in ensuring the right services are regulated and registered, that we are responding to risks swiftly and taking appropriate action and understanding pathways and healthcare.

09:50
  • Joanne Silkstone, Learning and Development Manager, United Response (confirmed)
"Tackling Discrimination, Prejudice and Hate Crime"

United Response’s ‘Am I Your Problem?’ campaign challenges the indifference, discrimination and sometimes outright hostility shown towards people with learning disabilities or autism. The charity polled 150+ people it supported about their experiences within different social settings; the widespread prejudices and, in some instances, malice they face is often not acknowledged, recognised or reported as a hate crime. Joanne will be co-presenting alongside a person born with learning disabilities who will share their personal experience(s) of discrimination.

10:10

Headline Supporter

10:30

Question and Answer Session

Debbie Ivanova, Deputy Chief Inspector of Adult Social Care Services, Care Quality Commission (CQC) (confirmed)

Joanne Silkstone, Learning and Development Manager, United Response (confirmed)

Speaker TBC

10:50

Coffee in the Networking Area

11:35

The midday conference session will feature NHS England's sensory project - a three-stranded approach to improving the eyecare, hearing and dental health of children and young people with learning disabilities and autism in special school environments.

11:35
  • Richard Everitt, Programme Manager: Optical Services Commissioning, NHS England and NHS Improvement (confirmed)
"NHS England Special School Eyecare Programme"

Children with learning disabilities and/or autism experience significant challenges getting access to community based eye care services, so most have to attend a hospital eye department for routine services such as a sight test. NHS England published it’s Long Term Plan in January 2019, and made a commitment in that document to improve access to sight, dental and hearing services for children attending special schools. The eye care service was launched in May this year, and has begun a national implementation programme starting in the North West. This new fully funded service will enable every child attending a special school to have a sight test, and for those who need them to have their glasses dispensed on the school premises by additionally trained Eye Care Teams. Each child will also receive a report written in plain English for teachers and parents/carers, explaining what the child can see, and offering advice on appropriate strategies to help the child engage more fully with their immediate environment; in the classroom and at home.

 

This presentation will explain why this service is needed, how it will be delivered and the work we have undertaken to put it in place, and talk about our broader ambition to improve eye care services for all people with a learning disability and/or autism.

11:55

Jack Stancel-Lewis, Healthcare Science Fellow & Audiologist, NHS England and NHS Improvement (confirmed)

Ruth Thomsen, Audiologist, Clinical Leadership Fellow and Scientific Director (London Region), NHS England (confirmed)

"Hearing Checks Programme"

The third-strand of the NHS' sensory project is focused on delivering hearing checks for children and young people with disabilities and autism in residential special schools.

12:15
"Improving Oral Health of Children and Young People with Learning Disabilities and Autism"

A representative from the Office of the Chief Dental Officer will deliver a presentation on the Long Term Plan commitment to improve oral health of children and young people with learning disabilities and autism in special educational settings.

12:35

Case Study

This slot is reserved for organisations looking to engage delegates with services and opportunities that compliment conference presentation and discussion panel topics. If you're interested in delivering a Case Study, contact us on 0161 376 9007.

12:55

Question and Answer Session

Richard Everitt, Programme Manager, Optical Services Commissioning, NHS England and NHS Improvement (confirmed)

Jack Stancel-Lewis, Healthcare Science Fellow & Audiologist, NHS England and NHS NHS Improvement (confirmed)

Ruth Thomsen, Audiologist, Clinical Leadership Fellow and Scientific Director (London Region), NHS England (confirmed)

Representative from the Office of the Chief Dental Officer (confirmed)

Speaker TBC

13:15

Lunch in the Networking Area

We'll be working with venues to ensure lunch at our events is as delicious as ever and caters for a range of dietary preferences - whilst being served in a safe and seamless manner. Some of the new measures we will be introducing to this effect are:

  • One-way queuing systems with safe distancing in operation.
  • Individual snacking bags containing fruit, trail mix and sweets provided on arrival - this will prevent people mixing around snack bars during networking breaks.
  • Individually portioned dishes and pre-sealed cutlery will be served at collection points.  

Where possible, we will request food is sourced locally to reduce food miles, use seasonal vegetables, red tractor certified meat and eggs from free range hens.

14:15

Chair’s Afternoon Address

14:20
  • Sarah Egley, Assistant Director Improvement, Innovation and Assurance, Derbyshire Community Health Services NHS Trust (confirmed)
  • Tracey Brailsford, Improvement, Innovation and Effectiveness Lead, Derbyshire Community Health Services NHS Foundation Trust (confirmed)
"How do we Measure ‘True’ Implementation of the NHS Learning Disabilities Improvement Standards from a Patient and Staff Perspective?"

The NHS has developed new standards with which NHS Trusts can measure the quality of care they provide to people with learning disabilities, autism or both. The four standards concern:

  1. Respecting and Protecting Rights: All Trusts must ensure they meet their Equality Act Duties to people with learning disabilities, autism or both, and that the wider human rights of these people are respected and protected, as required by the Human Rights Act.
  2. Inclusion and Engagement: Every trust must ensure all people with learning disabilities, autism or both and their families and carers are empowered to be partners in the care they receive.
  3. Workforce: All trusts must have the skills and capacity to meet the needs of people with learning disabilities, autism or both by providing safe and sustainable staffing, with effective leadership at all levels.
  4. Specialist Learning Disability Services: Trusts that provide specialist learning disabilities services commissioned solely for the use of people with learning disabilities, autism or both must fulfil the objectives of national policy and strategy. 

Sarah Egley and Tracey Brailsford will present on their experience(s) of implementing the Learning Disabilities and Autism NHS Standards into an NHS Trust; providing delegates with a pathway for doing so themselves in a manner that ensures meaningful collaboration with carers and people who have a learning disability or autism.

14:40
"Mind of My Own - Express"

Jill Thorburn co-founded Mind Of My Own after spending in excess of 25 years in social work senior management in local authorities, private and voluntary providers. Always passionate about children being able to fully participate in their lives Jill’s work was featured in a number of Government papers on innovation and partnership development in children’s services including Every Child Matters.

 

During this presentation Jill will talk about why she is driven to make sure that all children can have their voices heard. She is now one of the founders of Mind Of My Own, a tech for good company that makes world leading digital participation tools for children and young people. These apps are designed and conscientiously co-produced with young people for young people. We believe that every child is able to have a say and we build apps to make sure they all have a chance to have their voices heard to safeguard themselves and promote their wellbeing.

15:00

Case Study

MacIntyre is a national charity supporting children, young people and adults who have a learning disability and/or autism. MacIntyre's services include residential and lifelong learning support for adults as well as school and further education provision for young people aged 10-25. MacIntyre's vision is for all people with a learning disability to live a life that makes sense to them.

15:20

Question and Answer Session

  • Sarah Egley, Assistant Director Improvement, Innovation and Assurance, Derbyshire Community Health Services NHS Trust (confirmed)
  • Tracey Brailsford, Improvement, Innovation and Effectiveness Lead, Derbyshire Community Health Services NHS Foundation Trust (confirmed)
  • Jill Thorburn, Director, Mind Of My Own (confirmed)
  • MacIntyre Representative, Representative, MacIntyre (confirmed)
15:35

Afternoon Refreshment Break

15:50

Case Study

In 1976, armed with a single phone in a rented office, Dimensions began supporting people with learning disabilities, autism and complex needs out of institutions, helping them lead ordinary lives in their local communities.

 

Forty years on, our work is fundamentally unchanged: we support people with learning disabilities and autism to have a louder voice, choice and control in their lives. Our 7000 colleagues deliver ambitious, effective, personalised support often with those whose previous support has not been successful. Working alongside our colleagues are family members and many of the people we support. They could be quality checkers, interviewers or members of our Council. Their voices and experiences inform the research we use to deliver improved outcomes. Together, we continue to prove that life really can get better.

16:10

Sue Stevenson, Chief Operating Officer, Healthwatch Cumbria

"Everyone has a Voice"

This Healthwatch Cumbria (HWC) project explores the extent to which service provision for people with learning difficulties supported them to have a “good” life. Five surveys were used to generate feedback from commissioners, providers, social workers, families/carers and people with learning disabilities. The recommendations are being delivered through the Cumbria Learning Disability and Autism Partnership Board.

16:30

Closing Keynote

  • Brian Evans, Matron for Learning Disabilities, Autism and Complex Needs , University Hospitals of Morecombe Bay Trust (confirmed)
"Accessing Healthcare, is it the Same for Everyone? Breaking Down Barriers and making Reasonable Adjustments to Ensure Everyone has Equal Access to Good Quality Healthcare"

Presentation synopsis coming soon...

16:50

Question & Answer Session

Brian Evans, Matron for Learning Disability, Autism and Complex Needs, University Hospitals of Morecambe Bay Trust (confirmed)

Representative from Dimensions (confirmed)

Sue Stevenson, Chief Operating Officer, Healthwatch Cumbria

17:05

Chair’s Closing Remarks and Event Close

  • Register for event

Having difficulty paying through Eventbrite? If you would like assistance registering your place please contact me on 0161 376 9007 and i'll be happy to assist. If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.

Discounts for 3 or more delegates are available.

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Luke Boulter
  • Gain 10 CPD Points.
  • Hear from case studies exploring how people with learning disabilities can and have been supported to maximise their life chances, employment opportunities, educational achievement and live with a greater degree of independence - to an extent previously considered unattainable, thanks in-part to advances in the application of emerging technologies and shifts in cultural attitudes toward learning disabilities.
  • Learn more about proposed reform(s) to the Mental Health Act, including the introduction of processes enabling people to express their preferences for care before the need arises for hospitalisation; as well as piloting the use of culturally appropriate advocates for patients from ethnic backgrounds and ensuring learning disabilities and autism are not grounds for detention in themselves.  
  • Assess and learn from how pre-existing health inequalities contributed to disproportionate mortality rates among people with learning disabilities during the first wave of the pandemic. 
  • Gain insight into how the Learning Disabilities and Autism NHS Improvement Standards can be implemented within a Community Trust in a manner that ensures meaningful collaboration with carers and people who have a learning disability or autism.
  • Hear from the NHS England Special School Eyecare Programme - transforming eye care for children with learning disabilities and delivering a comprehensive eyecare service that goes beyond the provision of sight tests alone; set in the context of children living with a learning disability or autism being 28x more likely to have serious sight issues in comparison with the general population.
  • See first-hand demonstrations of the meaningful difference new technologies are making in the lives of people with learning disabilities. 
  • Learn more about how healthcare inequalities impacting the lives of people living with learning disabilities or autism can be addressed and the same level of protection assured to them as is experienced by the rest of the population.
  • Listen to people with diverse experiences of living with learning disabilities or autism and develop best practices informed by their circumstances in safeguarding from online harm(s), establishing good support networks and implementing/engaging with NHS initiatives.
  • Contact Details
  • Sponsors
  • Supporters
  • Venue
  • Featured Events
  • Downloads
  • Who will attend

Contact Details

Sponsors

Supporters

Venue

Manchester Conference Centre

Manchester Conference Centre

Manchester Conference Centre is the ideal solution when searching for conference venues in Manchester. Top-of-the-range conference suites, 3 star value hotel accommodation, delicious dining and friendly service are the ideal components for a successful conference or event in the heart of the city centre.

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From the get-go we strive for excellence in everything we do and our dedicated team of conference professionals go all out to make sure your conference, event or exhibition runs like clockwork.

Featured Events

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  • Improving Lives: Autism and Learning Difficulties

    • 12 October 2017
    • 08:30 - 16:30
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  • Improving Lives: Supporting Adults with Learning Disabilities

    • 31 January 2017
    • 08:30 - 16:15
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  • Learning Disabilities: Fulfilling Potential and Supporting Better Lives

    • 13 March 2018
    • 08:30 - 16:00
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  • Social Care Reform: Improving Care and Support for Older People

    • 01 November 2018
    • 08:30 - 16:30
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  • The 7th Learning Disabilities and Autism: Promoting Positive Outcomes Conference

    • 24 September 2019
    • 08:30 - 15:45
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  • Learning Disabilities and Autism: Promoting Positive Outcomes

    • 12 March 2019
    • 08:30 - 15:45
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Downloads & Resources

  • Open Forum Events Sponsorship Brochure
    Open Forum Events offer a number of partnership, sponsorship and exhibition opportunities that can meet your marketing and business development needs.

who will attend

  • Carer
  • Clinical Commissioning Group member
  • Clinical Psychologist
  • Councillor
  • Direct Payment Team member
  • Director / Manager of Care Homes
  • Director of Adult Mental Health Services
  • Director of Adult Safeguarding
  • Director of Adult Social Services
  • Director of Community / Domiciliary Care
  • Director of Disability Services
  • Director of Older People's Services
  • Director of Public Health
  • Director of Supported / Sheltered Housing
  • Doctor
  • DoLS (Deprivation of Liberty Safeguards) Co-Ordinator
  • Health and Wellbeing Boards member
  • Health Visitor
  • Learning Disability / Disability Liaison Nurse
  • Neighbourhood and Community Policing Team member
  • Nurse
  • Outreach worker
  • Personalisation and Self-Directed Support Team member
  • Probation Officer
  • Safeguarding Adults Board member
  • Senior Police Personnel
  • Support Worker