Living Well with Autism: Beyond the Limitations
- 28 May 2015
- 08:00 - 13:30
- Manchester Conference Centre
All Open Forum Events staff have been vaccinated against Covid-19. We are committed to running in-person events as we recognise the importance of bringing ideas and people together. Our conferences will be delivered by responsible staff who have worked diligently to ensure your conference experience is safe, seamless and above all else – enjoyable.
Open Forum Events are proud to be recognised as a leading organiser of national conferences informed by the experiences of people living with or affected by learning disabilities and autism. This year's conference will mark our seventh annual event providing a platform for learning through keynotes, panels, knowledge sharing and dissemination of best practice - discussing contentious issues and challenging topics, as well as assessing the way forward.
Conference delegates will take away the following benefits of attending this face-to-face conference:
Faizan has lived with Mosaic Edwards' syndrome since birth. All babies born with Edwards' syndrome will have some level of learning disability and sadly, the majority of babies born with Edwards' syndrome will not live past their first birthday. Faizan, now 18, has struggled with a speech impediment so severe that it prevented him from being able to say his own name until 2019.
With support, Faizan has learnt to speak with confidence about overcoming a disability and will Chair sessions of the conference.
Read more about Faizan's story in the Manchester Evening News here.
Unfortunately, we’ve seen too many times over the past few years that people with a learning disability and autistic people are not getting access to the right care. Despite significant national attention on this issues, over 2,000 people remain in hospital which is not in line with best practice. In this session, we’ll talk about how the CQC have put in place a new role to focus on implementing changes to our regulation specifically for people with a learning disability and those that care for autistic people.
Join us to understand CQC’s key work areas in ensuring the right services are regulated and registered, that we are responding to risks swiftly and taking appropriate action and understanding pathways and healthcare.
United Response’s ‘Am I Your Problem?’ campaign challenges the indifference, discrimination and sometimes outright hostility shown towards people with learning disabilities or autism. The charity polled 150+ people it supported about their experiences within different social settings; the widespread prejudices and, in some instances, malice they face is often not acknowledged, recognised or reported as a hate crime. Joanne will be co-presenting alongside a person born with learning disabilities who will share their personal experience(s) of discrimination.
The midday conference session will feature NHS England's sensory project - a three-stranded approach to improving the eyecare, hearing and dental health of children and young people with learning disabilities and autism in special school environments.
Children with learning disabilities and/or autism experience significant challenges getting access to community based eye care services, so most have to attend a hospital eye department for routine services such as a sight test. NHS England published it’s Long Term Plan in January 2019, and made a commitment in that document to improve access to sight, dental and hearing services for children attending special schools. The eye care service was launched in May this year, and has begun a national implementation programme starting in the North West. This new fully funded service will enable every child attending a special school to have a sight test, and for those who need them to have their glasses dispensed on the school premises by additionally trained Eye Care Teams. Each child will also receive a report written in plain English for teachers and parents/carers, explaining what the child can see, and offering advice on appropriate strategies to help the child engage more fully with their immediate environment; in the classroom and at home.
This presentation will explain why this service is needed, how it will be delivered and the work we have undertaken to put it in place, and talk about our broader ambition to improve eye care services for all people with a learning disability and/or autism.
The third-strand of the NHS' sensory project is focused on delivering hearing checks for children and young people with disabilities and autism in residential special schools.
Urshla Devalia is a Paediatric Dental Consultant working at the Eastman Dental Hospital, UCLH, London. She is also Clinical Policy Lead for NHS England & Improvement at the Office of the Chief Dental Officer, leading on the oral health initiative for children and young people with learning difficulties and/or autism in residential special education settings, as part of the NHS Long Term Plan. This program is part of the overall sensory initiative working alongside audiology and optometry.
This presentation will cover the Long Term Plan commitment to improve oral health of children and young people with learning disabilities and autism in special educational settings.
Presentation synopsis coming soon...
We'll be working with venues to ensure lunch at our events is as delicious as ever and caters for a range of dietary preferences - whilst being served in a safe and seamless manner. Some of the new measures we will be introducing to this effect are:
Where possible, we will request food is sourced locally to reduce food miles, use seasonal vegetables, red tractor certified meat and eggs from free range hens.
The NHS has developed new standards with which NHS Trusts can measure the quality of care they provide to people with learning disabilities, autism or both. The four standards concern:
Sarah Egley and Tracey Brailsford will present on their experience(s) of implementing the Learning Disabilities and Autism NHS Standards into an NHS Trust; providing delegates with a pathway for doing so themselves in a manner that ensures meaningful collaboration with carers and people who have a learning disability or autism.
Eden Futures is a leading specialist supported living provider for adults with learning disabilities, mental ill health and autism. Its business has grown substantially and now employs 1,200 people in the Midlands and the North of England. The team provides care and support to 650 service users ensuring they’re able to live independently in the community while occupying shared houses, sole apartments and specialist bungalows. Its vision is to support as many people with learning disabilities, autism and mental health needs as possible to increase their independence and live fulfilling lives.
Jill Thorburn co-founded Mind Of My Own after spending in excess of 25 years in social work senior management in local authorities, private and voluntary providers. Always passionate about children being able to fully participate in their lives Jill’s work was featured in a number of Government papers on innovation and partnership development in children’s services including Every Child Matters.
During this presentation Jill will talk about why she is driven to make sure that all children can have their voices heard. She is now one of the founders of Mind Of My Own, a tech for good company that makes world leading digital participation tools for children and young people. These apps are designed and conscientiously co-produced with young people for young people. We believe that every child is able to have a say and we build apps to make sure they all have a chance to have their voices heard to safeguard themselves and promote their wellbeing.
MacIntyre is a national charity supporting children, young people and adults who have a learning disability and/or autism. MacIntyre's services include residential and lifelong learning support for adults as well as school and further education provision for young people aged 10-25. MacIntyre's vision is for all people with a learning disability to live a life that makes sense to them.
In 1976, armed with a single phone in a rented office, Dimensions began supporting people with learning disabilities, autism and complex needs out of institutions, helping them lead ordinary lives in their local communities.
Forty years on, our work is fundamentally unchanged: we support people with learning disabilities and autism to have a louder voice, choice and control in their lives. Our 7000 colleagues deliver ambitious, effective, personalised support often with those whose previous support has not been successful. Working alongside our colleagues are family members and many of the people we support. They could be quality checkers, interviewers or members of our Council. Their voices and experiences inform the research we use to deliver improved outcomes. Together, we continue to prove that life really can get better.
This Healthwatch Cumbria (HWC) project explores the extent to which service provision for people with learning difficulties supported them to have a “good” life. Five surveys were used to generate feedback from commissioners, providers, social workers, families/carers and people with learning disabilities. The recommendations are being delivered through the Cumbria Learning Disability and Autism Partnership Board.
Brian Evans, Matron for Learning Disabilities, Autism and Complex Needs at University Hospitals of Morecambe Bay NHS Trust will present a case study that reflects on the care planning and facilitation of reasonable adjustments to ensure a patient with learning disabilities, complex needs and an acute fear of hospitals and medical intervention received fair access to good quality healthcare and treatment.
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If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.
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